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HI,
When my lymph glands showed positive (and I had skin mets) the only thing that worked was Tykerb (for a while). I was about to have them removed (and the rest) when I found a new onc who said the treatment needed changing, that removing them was like 'shooting yourself in the foot'. (He is an eccentric Brit). He uses them as markers so he can see if the treatment is working.
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1999 IVDC oe+ grade 3
epirubicen, cysplatin, 5FU;
lumpectomy L breast, radiotherapy 6 wks, tamoxifen 3 mths, Examestane 5 yrs
2005 mastectomy (Left ) 10cm IDC in lymphatic system and blood vessels oe- HER2 ++;Taxotere, Herceptin 18 mths
2006 skin tumours below scarline Add Femera, 3 weeks radiotherapy twice daily (unsuccessful)
excision of tumours.
2007 jan skin tumour on L chest wall; positive Right axilla
Temerifen.
September Ca markers rise. Start Tykerb 3 wks radiotherapy
2008 skin tumours regrow. latissimus dorsal flap for excision of skin tumours March 08. HER2++++
Faslodex injections
CEA and Ca15.3 rising
2009
CT scan shows multiple mets in liver, lungs and inguinal glands. Stop Tykerb. Start Xeloda
CEA and Ca15.3 dropping like a stone. Skin tumours disappear.
Return 6 months later.
CT shows increase in size and number liver and lung mets.
Oct: Cyclophosphamide
Markers continue to rise. Change to Caelyx
2010
CEA marker in the 2000s Back to Herceptin
New tunour R Breast
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