HER2 Support Group Forums - View Single Post - Feeling so desperate

kk1 · 03-21-2009, 09:59 AM

Hi Missy;

Don't despair, as Chrisy said the fact that you went 3 years NED and now only have one met is very promising. As you can see from the responses there are lots of options out there and many of us are living great lives in spite of liver mets. I've had two liver resections for single mets. Resection is not right for everyone but I prefer the surgery option when possible. It's a bit tough the first two weeks after, due to the incision, but each time 5-6 weeks later I was completely back to normal doing sports, gardening and even down hill skiing. Plus I have the piece of mind that at least for the time being the beast has been expelled from my body and I am not wondering if the chemo is working or not. I tend to be an impatient patient. I also have children of the same age, to my amazement they always manage to deal with my relapsed better than I ever would have thought.

Hang in there, the worst feeling is the period before you have your battle plan. Send me a PM if you want to ask any questions.

03-21-2009, 09:59 AM	#14
kk1 Senior Member Join Date: Sep 2005 Posts: 182	Hi Missy; Don't despair, as Chrisy said the fact that you went 3 years NED and now only have one met is very promising. As you can see from the responses there are lots of options out there and many of us are living great lives in spite of liver mets. I've had two liver resections for single mets. Resection is not right for everyone but I prefer the surgery option when possible. It's a bit tough the first two weeks after, due to the incision, but each time 5-6 weeks later I was completely back to normal doing sports, gardening and even down hill skiing. Plus I have the piece of mind that at least for the time being the beast has been expelled from my body and I am not wondering if the chemo is working or not. I tend to be an impatient patient. I also have children of the same age, to my amazement they always manage to deal with my relapsed better than I ever would have thought. Hang in there, the worst feeling is the period before you have your battle plan. Send me a PM if you want to ask any questions. __________________ KK1 April 2004 de novo metastatic left breast 1.5cm her2++,er+/pr+ with 2 small liver mets weekly taxotere,herceptin, xeloda Sept 2004 NED-3 herceptin, zoladex,aromasin Dec 2006 recurrence in liver Feb. 2007 liver resection left lobe removed-herceptin, zoladex, switch to Arimidex NED 16 months added zometa May 2008 new lesion in liver 15mm Tykerb/Xeloda/Herceptin July 2008 stable...yeah! Sept 2008 NED again !!! Jan 2009 fell off the wagon again spot back in the liver and fell out of menopause. Feb 2009 RFA and 2nd liver resection to remove spot ---back on the NED wagon again continue Tykerb, Herceptin. March 2009- oophrectomy added Femara and bi-annual Zometa May 2009- scans clear but suspect lung nodule June 2009- Lung VAT wedge resection to remove nodule---fungus ball not cancer!! phew Aug 2009- NED Nov 2009-scans again clear YAHOO! March 2010- scans clear continue Tykerb, Herceptin, Femara, Zometa Q6mo Nov 2009-Nov 2019 scans clear done every 6 months Feb 2020 - Fell out of the NED wagon hard! single liver lesions and large infect cyst. 3 weeks in ICU. March 2021- 5 cycles perjeta, herceptin, navelbine. lesion stable. June 2021 - 3rd liver resection to remove single liver lesion. Continued perjeta, herceptin. Nov. 2021- PET scan show 5 hot nodes near liver. 9 cycles Kadcyla June 2021- PET scan shows progression. nodes size unchanged but even more SUV uptake. July 2021- start ENHERTU