HER2 Support Group Forums - View Single Post - VITAMIN D Checked

StephN · 03-19-2009, 12:20 PM

As of my blood test on Feb. 21, after completing the 8 weekly doses of 50,000iu of Vitamin D, my level went UP TO 50!

I was very happy about that. So, now I am taking the 2,000 per day that my oncologist recommended and we will monitor again in 6 weeks. I hope to keep my level in the range of 50, which is a number my doctors like. I was cautioned about taking any more than 4,000 IU per day, as there are problems with toxicity if levels reach in the 100-150 range.

CALCIUM - I also discussed the need to bump up my calcium intake. Even though my serum calcium from the lab work is normal, our blood will rob our bones of calcium if there is not enough intake. Thus weakening our bones. After seeing how much calcium I get in my regular supps, I will take another couple of 500mg doses. (We need to spread the doses out from morning to night for best effect.)

ERIC - This partly answers your questions, but I do not know about any conflict with chemo. Did you happen to address this with Caryn's doctors since you posted that question?

03-19-2009, 12:20 PM	#9
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Followup to vit. D megadosing As of my blood test on Feb. 21, after completing the 8 weekly doses of 50,000iu of Vitamin D, my level went UP TO 50! I was very happy about that. So, now I am taking the 2,000 per day that my oncologist recommended and we will monitor again in 6 weeks. I hope to keep my level in the range of 50, which is a number my doctors like. I was cautioned about taking any more than 4,000 IU per day, as there are problems with toxicity if levels reach in the 100-150 range. CALCIUM - I also discussed the need to bump up my calcium intake. Even though my serum calcium from the lab work is normal, our blood will rob our bones of calcium if there is not enough intake. Thus weakening our bones. After seeing how much calcium I get in my regular supps, I will take another couple of 500mg doses. (We need to spread the doses out from morning to night for best effect.) ERIC - This partly answers your questions, but I do not know about any conflict with chemo. Did you happen to address this with Caryn's doctors since you posted that question? __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.