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Old 03-15-2009, 06:46 AM   #39
Laurel
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Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
Exclamation Triple Positive Role Call?

Amelia (aka Schoolteacher), please let me know about the E-Cadherin testing. I will be seeing my onc on Wednesday and will definitely be bringing our discussion to her. I am strongly triple positive: Her-2 = 6.9, Er=80%, Pr=90%. Presently I am taking Tamoxifen for 1.5 yrs whereupon I will switch over to an A.I. This plan has been suggested as I am 49 and although I have not had a period since May, I may not be menopausal. Another question for my onc: how do you test to know whether you are postmenopausal.?

Well, another fine mess to sort out on our own, huh? By the way, just wondering how many triple pos. folks are out there? I know we are the minority within the Her-2 community. Can we get a role call going?
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Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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