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Old 03-04-2009, 07:45 AM   #3
vickie h
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Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
Hi Marily,
I am about 1 year off Herceptin. I didn't have any of those symptoms (except the brain fog from chemo). I did have mouth sores, but upped my vitamin B6 uptake to 100-200mg a day and they went away in a week. Sometimes mouth sores are tied to our digestive system (since they are a part of that digestive tract) and the diligent use of probiotics can clear them up, as well, as sufficient vitamin C.
I am about to go back on Herceptin next week, along with Navelbine and Cytoxin. Though I am not looking forward to the chemo, I am happy to have the Herceptin back. Try adding some B6 and probiotics and hopefully that will clear the problem up.
Love, Vickie
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Love and Hugs, Vickie

Life's not about waiting for the storm to pass,
It's about learning to dance in the rain.


Feb 04 IBC IIIC/IV er-/pr- her2+++
3/04 TCH X4
7/ 04 MRM 9/04 Taxol/herceptin wkly 1 yr 33X rads
11/04 skin mets 33x rads,10/05 Avast/Herc. 11 mos.
8/ 06 PET mets lymphs, neck
9/ 06 Navelbine/herceptin
11/ 06 PET NED
2/ 07 skin mets, 4/07 Xeloda, 5/07 add Tykerb
2/ 08 Tykerb failed. Doxil /Herceptin 6 months
8/08 PET skin mets, 8/08 Abraxane/Avastin
11/ 08 PET prog., skin mets
1/09 PET/CT progress, 1/09 Ixempra, 2/09 add Xeloda and low dose Naltrexone
2/09 off Ixempra/Xeloda
3/09 navelbine/herc/cytoxin 4/09 PET shows regress.7/09 start Topotecan. Failed.
8/09 extensive mets rgt brst, back and torso. starting Pazopanib clinical trial.
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