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Old 02-27-2009, 08:45 AM   #14
Darlene Denise
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Join Date: Aug 2008
Location: Virginia Beach, Virginia
Posts: 145
Brain Met Treatment

Anita: I am lucky to have an onc that feels it is imperitive to do MRIs on HER+++ based on the likelyhood that we may experience brain mets AT ANY TIME with our tumor type. Mine were revealed on a routine MRI just 8 months after dx with no symptoms and NED neck down. He had one done at staging, three months later and six months later, which was done a little early because of scheduling. Good for me, since we caught them all under 6mm. My onc is a scan-a-holic, he says you can't fight what you can see. Let your onc know that you do not want your insurance company dictating your care. Order the scan and see if there is an approval issue, don't assume there will be one. Some HMOs penalize physicians for certain tests. I hope this is not the case for you. Ask your onc what the issue really is and insist you will accept only the most progressive care, your life depends on it!

I received Cyberknife treatment at UNC Chappel Hill, NC with Dr David Morris. Dr Lisa Carey is a highly sought after breast oncologist at UNC. She treats Elizabeth Edwards. I will be going to UNC for a follow up brain MRI Monday. Hoping for only good news!! I live in Virginia Beach, Va and my community onc is superior but knows his resources may have limits and is very supportive about reaching out for additonal care and guidance. He has consulted with Memorial Sloan Kettering on my case twice and I have a breast onc at Dana Farber that follows my care as well. My Dr at Dana Farber knows Dr Lisa Carey at UNC and is very complmentary of her and her work.

I say cast a big net and let your onc know he is key to you receiving the best care with the support of others in an academic setting.

All of my best hopes and wishes to you.

Darlene
__________________
12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
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