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Jackie07 · 02-26-2009, 08:31 PM

It took me quite a while to figure out everything on this board. Call it chemo brain or cancer fatigue, I just think it is important for us to 'focus'.

For those who use Facebook to connect with family and friends, go ahead enjoy it. If you want to invite your Her-2 support Group friends, please put it in your signature so those who are interested can connect with you that way.

I remember using our 'Chat' function a couple of times and didn't really get anything 'solid' out of it. But it was exciting to have received a message from one of the members asking "Do you want to chat?" I think our private message can be a good conduit for one-on-one chat. And our regular postings can really be a good chat - one of our new comers did it in her Thread. She asked a question and gave her feedback whenever a member posted a reply. She became a moderator of her own thread. And everyone had a meaningful, personal 'chat' with her.

Whatever Joe decides to do is completely fine with me. We've got warnings about Facebook from a member who is a practising attorney. I guess if there's any problem in the future, she will be able to explain to us the legal aspect of it.

02-26-2009, 08:31 PM	#44
Jackie07 Senior Member Join Date: Jan 2008 Location: "Love never fails." Posts: 5,808	It took me quite a while to figure out everything on this board. Call it chemo brain or cancer fatigue, I just think it is important for us to 'focus'. For those who use Facebook to connect with family and friends, go ahead enjoy it. If you want to invite your Her-2 support Group friends, please put it in your signature so those who are interested can connect with you that way. I remember using our 'Chat' function a couple of times and didn't really get anything 'solid' out of it. But it was exciting to have received a message from one of the members asking "Do you want to chat?" I think our private message can be a good conduit for one-on-one chat. And our regular postings can really be a good chat - one of our new comers did it in her Thread. She asked a question and gave her feedback whenever a member posted a reply. She became a moderator of her own thread. And everyone had a meaningful, personal 'chat' with her. Whatever Joe decides to do is completely fine with me. We've got warnings about Facebook from a member who is a practising attorney. I guess if there's any problem in the future, she will be able to explain to us the legal aspect of it. __________________ Jackie07 http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2 NICU 4.4 LB Erythema Nodosum 85 Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d 3 Infertility tmts 99 > 3 u. fibroids > Pills CN 3 GKRS 52301 IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET 6 TCH Cellulitis - Lymphedema - compression sleeve & glove H w x 4 MUGA 51 D, J 49 M Diastasis recti Tamoxifen B. scan Irrtbl bowel 1'09 Colonoscopy 313 BRCA1 V1247I hptc hemangioma Vertigo GI - > yogurt hysterectomy/oophorectomy 011410 Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk DEXA 1/13 1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer. 3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer. Start Vitamin D3 and Calcium supplement （600mg x2) 10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016 7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence. 7-10-2019 CT to check lung nodule. 1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule. "I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa Advocacy is a passion .. not a pastime - Joe Last edited by Jackie07; 02-26-2009 at 08:57 PM..