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StephN · 02-17-2009, 02:23 PM

Hi Rahab -
And congrats on fighting this good fight for so long. I do take a few supplements and made dietary changes years ago when I became stage IV.

I did take Navelbine, which in combination with Herceptin and Taxol, halted and resolved my liver mets. With the general spread you are fighting, you seem to need something new.

Remember that cancer cells are the hardest to kill and that is why a very effective way to interfere with their proliferation is necessary in getting back ahead of the game.

You may want to try Xeloda, which does have side effects, but is also synergistic with Herceptin. No one can tell you what to do, but it may be high time to get tough and put up a different fight.

There is also the Trastuzamab-DM1 trial that is doing a lot of good for many of our members here.

02-17-2009, 02:23 PM	#12
StephN Senior Member Join Date: Nov 2004 Location: Misty woods of WA State Posts: 4,128	Hi Rahab - And congrats on fighting this good fight for so long. I do take a few supplements and made dietary changes years ago when I became stage IV. I did take Navelbine, which in combination with Herceptin and Taxol, halted and resolved my liver mets. With the general spread you are fighting, you seem to need something new. Remember that cancer cells are the hardest to kill and that is why a very effective way to interfere with their proliferation is necessary in getting back ahead of the game. You may want to try Xeloda, which does have side effects, but is also synergistic with Herceptin. No one can tell you what to do, but it may be high time to get tough and put up a different fight. There is also the Trastuzamab-DM1 trial that is doing a lot of good for many of our members here. __________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment. MY STORY SO FAR ~~~~ Found suspicious lump 9/2000 Lumpectomy, then node dissection and port placement Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR - Adriamycin 12 weekly, taxotere 4 rounds 36 rads - very little burning 3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED! 2003 & 2004 no active disease - 3 weekly Herceptin + Zometa Jan 2005 two mets to brain - Gamma Knife on Jan 18 All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying Continue as NED while on Herceptin & quarterly Zometa Fall-2006 - off Zometa - watching one small brain spot (scar?) 2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava 2008 - Brain and body still NED! Port removed and scans in Dec. Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011 STILL NED everywhere in Feb 2014 - on wing & prayer 7/14 - Started twice yearly Zometa for my bones Jan. 2015 checkup still shows NED 2015 Neuropathy in feet - otherwise all OK - still NED. Same news for 2016 and all of 2017. Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018. Last edited by StephN; 02-17-2009 at 02:26 PM..