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Gerri · 02-08-2009, 08:05 AM

Hi Charlotte,

I am so sorry to hear about your heart problems. I hope your cardiologist will be successful in treating you.

I also had twitching/jerking in my legs. It started when I was on Herceptin. My legs would jerk or spasm constantly. For me it was all day long, not just at night. At the time I thought it was a side effect of Herceptin. My onc could not figure it out. I had pretty extensive peripheral neuropathy from Taxol so I have since come to believe (my own theory) that it is residual nerve damage. I still have slight tingling in my toes and my legs still twitch (very slightly), especially when they are tired. If yours only occurs when you are in bed it just may be Restless Leg Sydrome. My symptoms didn't quite match those of RLS (I didn't have the creepy-crawly feelings) so I was able to rule that out.

I'm sorry you have so much to deal with right now. Please don't hesitate to post because you are feeling down - that is exactly when you should be reaching out to everyone here for support.

Take good care and keep us posted.

02-08-2009, 08:05 AM	#3
Gerri Senior Member Join Date: Oct 2006 Location: Southern California Posts: 900	Hi Charlotte, I am so sorry to hear about your heart problems. I hope your cardiologist will be successful in treating you. I also had twitching/jerking in my legs. It started when I was on Herceptin. My legs would jerk or spasm constantly. For me it was all day long, not just at night. At the time I thought it was a side effect of Herceptin. My onc could not figure it out. I had pretty extensive peripheral neuropathy from Taxol so I have since come to believe (my own theory) that it is residual nerve damage. I still have slight tingling in my toes and my legs still twitch (very slightly), especially when they are tired. If yours only occurs when you are in bed it just may be Restless Leg Sydrome. My symptoms didn't quite match those of RLS (I didn't have the creepy-crawly feelings) so I was able to rule that out. I'm sorry you have so much to deal with right now. Please don't hesitate to post because you are feeling down - that is exactly when you should be reaching out to everyone here for support. Take good care and keep us posted. __________________ Gerri Dx: 11/23/05, Lumpectomy 12/12/05 Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative ER+ (30%) /PR+ (50%), HER2+++ AC X 4 dose dense, Taxol X 4 dose dense Herceptin started with 2nd Taxol, given weekly until chemo done then given every 3 weeks for one year ending on March 16, 2007 Radiation 30 treatments Tamoxifen - 2 yrs (pre-menopausal) May 2008 - Feb 2012 Femara Aug 2008 - Feb 2012 Zometa every 6 months March 2012 - Stop Femara, now Evista for bone strengthening ********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault Last edited by Gerri; 02-08-2009 at 06:25 PM.. Reason: spelling