[Jean]

Have you discussed with your dr. about cutting down the treatment and going in for treatment weekly? This may eae the side effects.

Your reaction on first trt is very harsh and it certainly sounds like an alergic one. But don't dispair as cutting down the infusion amount of the drugs could be your answer along with anti alergic meds. Are you on a steriod prior to treatment?

I had bone pain but that did not hit until round 3.
I would take alieve and it would decrease by day 3 after treatment. I also would place a warm heating pad on my legs and I also put a pillow unde my legs. Warm baths were also helpful.

I would use warm boiled water and rinse my mouth
and I eat at least two yogurt per day (I believe the yogurt kept the ph in my mouth at a healthy level) I did not experience any mouth sores. Try the yogurt and I hope it will help you also, and it provides a good source of protein.

Sorry that your first treatment was so difficult. But as Becky said, don't give up and I am sure your dr. can provide additional care to help you to continue.

Best Wishes,
Jean