[Believe51]

Aw Snufi, sorry about the way you are feeling after the chemo. These experts can give better advice on the drug combo. I have had 2 friends (out of many, many) that had such a reaction to this combo. One had to be hospitalized during chemo since she had no choice, her options were running out. Your doctor may want to switch the chemo regime if you are having difficulties that do not get better.

Make sure you keep hydrated as best you can before, during and after chemo. Try to suck on some ice chips or popsicles during the infusion. Biotene makes wonderful mouth products to keep the mouth healthy, especially during times like this. For the 'bad taste in the mouth', Altoids Sour Apple or Citrus, OR lemon drops worked wonders for that 'metal' taste in his mouth. The mouth sores can be painful, thus adding to the no appetite problem. Once you get them under control consider using the Biotene.

The pain meds can always be changed for the next appointment to something stronger. Remember, pain meds taken for pain is different than an average person catching a buzz from them with no pain. You need not only something for pain but something for 'breakthrough' pain. Again, the experts can better help you with all of the pain from this combo more than I can.

Appetite is a tough one to conquer. One knows they must eat to maintain a healthy body during one of the roughest things it will be subjected to. Easier said than done! Try eating small quanities of food throughout the day. This is all easy to write but I do not belittle any of this. Ed had such severe eating dificulties that he had to go on Magace to stimulate him. He also had a prescription for Marinol, a prescription based marijuana. During these tough times he refused to take it but had little choice at one point.

Oh My Sweet, please do not take this post as anything other than....'he has been there done that' while I watched in despair. Treatment is extremely difficult but you appear to, IMO have had a bad reaction like the doctor thinks may have happened. Again, this post is to let you know I am listening and loving you through this very tough time.

Please keep us posted when you are feeling better. I am sure that you shall be rescued from the experienced family members here. Their advice will be much better than mine. Sending you a gentle hug and whispering in your ear that we are right here walking besides you through this trying experience! Stay strong and tough. You will get through chemo, maybe not this combo, but you will make it by. When you do, we will all be clapping and cheering for your accomplishments. Love>>Believe51