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Old 01-12-2009, 03:43 PM   #9
Cathya
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Join Date: Sep 2005
Location: Ontario, Canada
Posts: 752
Laurieanne;

Since my bout with bc including chemo (ac/taxol) and herceptin I have had a stroke and more recently a TIA. In my experience the TIA was very different from any sensation I felt in my hands/arms during or after chemo. I was not aware that I was having my stroke. I had been very dizzy but this was during my second bout of herceptin and my injection fraction was very low. It was only during a brain mri that it was identified. In November I had a TIA. My left arm went completely numb and felt swollen. I was in the middle of a store walking with my daughter and mother so I continued walking and rotated my arm for about 10 minutes until the sensation left. Following this I went to the hospital where I had blood work and an ekg. My blood pressure was very high and the neurologist put me on three different medications...heart, blood thinner and lipitor. It is routine here to have follow up tests which I am now concluding. My heart seems fine and this seems to be a lacunar stroke originating in my brain. Up until this time I had not been particularly reducing my salt intake etc. but I certainly am now. I also watch my blood pressure closely and with the medication it generally remain below 120/80. I am not sure exactly why I am having these problems and feel quite good now but my own gp believes that it is from the treatments for my bc as I didn't have high blood pressure or cholesterol previously. I hope this helps. The tests they are having me do are a doppler, echo cardiogram, halter moniter and head ct.

all the best,
Cathy
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Cathy

Diagnosed Oct. 2004 3 cm ductal, lumpectomy Nov. 2004
Diagnosed Jan. 2005 tumor in supraclavicular node
Stage 3c, Grade 3, ER/PR+, Her2++
4 AC, 4 Taxol, Radiation, Arimidex, Actonel
Herceptin for 9 months until Muga dropped and heart enlarged
Restarting herceptin weekly after 4 months off
Stopped herceptin after four weekly treatments....score dropped to 41
Finished 6 years Arimidex
May 2015 diagnosed with ovarian cancer
Stage 1C
started 6 treatments of carboplatin/taxol
Genetic testing show BRCA1 VUS
Nice! My hair came back really curly. Hope it lasts lol. Well it didn't but I liked it so I'm now a perm lady
29 March 2018 Lung biopsy following chest CT showing tumours in pleura of left lung, waiting for results to the question bc or ovarian
April 20, 2018 BC mets confirmed, ER/PR+ now Her2-
Questions about the possibility of ovarian spread and mets to bones so will be tested and monitored for these.
To begin new drug Palbociclib (Ibrance) along with Letrozole May, 2018.
Genetic testing of ovarian tumour and this new lung met will take months.
To see geneticist to be retested for BRCA this week....still BRCA VUS
CA125 has declined from 359 to 12 as of Aug.23/18


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