Thread: Need Advise
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Old 01-08-2009, 08:37 PM   #13
Faith in Him
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Join Date: Jul 2007
Location: Northern California
Posts: 764
Thank you all for your responses. I do feel that I need to seek another opinion. My onc does not do tumor markers so I believe at this point he would just order scans. I have had a total of three scans. Once after dx, once after my recurrence and the last one just because he felt it had been awhile.

He did not mention keeping me on herceptin but I will definately ask for that. I am willing to be on chemo for as long as it takes but would like some kind of idea of when to stop. At this point, since I have never had, to my knowledge, tumor markers done, I don't know if they are reliable for me. So I don't know if I should push for them.

I have two major University next to me. UCSF and Stanford. Stanford will cost me $750 out of pocket but in the big sceme of things it may well be worth the money.

I'll keep you posted.

Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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