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When my mother passed away from breast cancer, and was bald, I told myself if I ever had the choice I would just refuse treatment. Now I find that my hair won't do me much good if I am dead. But in the same sentence, I wanna die with my hair. It makes me so mad too. I just started dating someone new, and my new onc tells me the treatment I had the first time I was stage 4 will cause my hair to fall out. It didn't cause it to fall out the first time, it just thinned a little. Why does he feel like he has to load me down with the medicine that worked in smaller doses the first time? If he loads me down, I will have count problems just like I did the first time and I will have to delay doses. I don't get it. But I tried to argue with him and he just wouldn't budge. It almost makes me want to get a new onc. I want my hair. If the low dose worked the first time, I would think it would be just as effective the 2nd time. Any thoughts?
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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