HER2 Support Group Forums - View Single Post - symptoms - scans

Colleen007 · 01-08-2009, 07:35 AM

Hi Pam,

I also have bone mets...where it says that "If the patient has recently been treated with bone marrow stimulating factors", the are most likely referring to Neupogen and/or Neulasta. Did you receive either of those injections after chemo for low white counts? I have to get them after every Navelbine treatment due to a history of low white counts and my PET scans also have that notation and I have been told there is nothing to worry about. Last time, I also had xrays and MRIs to be sure and there was nothing on those tests to back up the remark on the PET (and those came back "clean").

I think it is good that you are also going for the MRI, as that will hopefully not show anything. Good luck.

01-08-2009, 07:35 AM	#2
Colleen007 Senior Member Join Date: Aug 2006 Location: Franklin, MA Posts: 131	Hi Pam, I also have bone mets...where it says that "If the patient has recently been treated with bone marrow stimulating factors", the are most likely referring to Neupogen and/or Neulasta. Did you receive either of those injections after chemo for low white counts? I have to get them after every Navelbine treatment due to a history of low white counts and my PET scans also have that notation and I have been told there is nothing to worry about. Last time, I also had xrays and MRIs to be sure and there was nothing on those tests to back up the remark on the PET (and those came back "clean"). I think it is good that you are also going for the MRI, as that will hopefully not show anything. Good luck. __________________ Diagnosed 10-03-2005 (34 wks pregnant, 38 yrs old) Lumpectomy Nov-2005. 10/18 Lymph Nodes impacted Mets to liver, spine & femurs (thus being stage IV right from the get-go) ER-, PR-, HER2+ Taxol/Herceptin/Zometa started Dec-2005. 11 cycles of Taxol. Sept-2006: PET/CT scan of mets to liver, spine and femurs - Stable. Activity in R breast & mediastinum (not seen in prior scans). Navelbine (3 wks on/1 wk off) as of Oct--2006 & continued Herceptin (every 3 wks) & Zometa (every 6 wks) Jan-2007: PET/CT Scan - Stable. Continued Nav. through March-2007, then Herc./Zom. only after that. June-2007: PET/CT Scan - activity in mediastinum. Back on Navelbine as of July-2007. Scanned Quarterly since Oct-2007 - a few small scares, but otherwise stable due to continuing weekly Navelbine, Herceptin and Quarterly Zometa.