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Chelee · 01-04-2009, 01:11 AM

Laurieanne, That's good news that nothing was found on the MRI or CT. Everyone can have different reactions to these drugs. I had quite a bit of neuropathy in my hands and feet from TCH. I did experience weakness during my treatments but that left once I finished.

I do have one thought since you said this seem to start when you went to the 3 wk dose of herceptin. Are you getting your herceptin infusion in 30 minutes or do you make them slow it down to 60 to 90 minutes? (It can make a difference.) I had problems with herceptin when they did it in 30 minutes but was fine once it was slowed down.
Also you could go back to wkly even though I realize that is not as convenient for you. I did most of my yr on wkly herceptin...only the last 3 months did I do the 3 wk schedule. That's all I can think of at present that might help. I sure hope they get this figured out for you. Hang in there.

Chelee

01-04-2009, 01:11 AM	#4
Chelee Senior Member Join Date: Feb 2006 Location: Southern, CA Posts: 2,511	Laurieanne, That's good news that nothing was found on the MRI or CT. Everyone can have different reactions to these drugs. I had quite a bit of neuropathy in my hands and feet from TCH. I did experience weakness during my treatments but that left once I finished. I do have one thought since you said this seem to start when you went to the 3 wk dose of herceptin. Are you getting your herceptin infusion in 30 minutes or do you make them slow it down to 60 to 90 minutes? (It can make a difference.) I had problems with herceptin when they did it in 30 minutes but was fine once it was slowed down. Also you could go back to wkly even though I realize that is not as convenient for you. I did most of my yr on wkly herceptin...only the last 3 months did I do the 3 wk schedule. That's all I can think of at present that might help. I sure hope they get this figured out for you. Hang in there. Chelee __________________ DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes. Rt. MRM on 1-3-06 -- No Rads due to compromised lungs. Chemo started 2-7-06 -- TCH - - Finished 6-12-06 Finished yr of wkly herceptin 3-19-07 3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07 9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV. 9-28-09 Loading dose of Herceptin & started Zometa 9-29-09 Power Port Placement 10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head. 11-19-09 RT. Femur surgery - Rod placed 12-7-09 Navelbine added to Herceptin/Zometa. 3-23-10 Ten days of rads to RT femur. Completed. 4-05-10 Quit Navelbine--Herceptin/Zometa alone. 5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy. Results to FISH was unsuccessful--this happens less then 2% of the time. 7-7-10 Recurrence to RT axilla again. Back to UCLA for options.