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Old 01-03-2009, 06:38 PM   #5
suzan w
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Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
You can see in my stats I had da similar decision to make. I chose to hit it with the biggest guns available..A/C was no fun and I had to quit after 4 rounds, Herceptin...piece of cake in comparison. I had the Onco type DX done...showed risk of recurrence, tho since then it seems like all of us Her2 gals score in that column on the Onco...that's because Her2 breast cancer has a higher than 'average'? chance of recurrence. I feel so lucky to have had Herceptin as I firmly believe it is one of the drugs now available that will lead to a 'cure' for BC for some of us. It is a touch decision for sure. I am glad to see Jean chiming in as we did alot of conferring on this subject 3+ years ago. And a BIG HI to AA...see me in New Mexico!!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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