HER2 Support Group Forums - View Single Post - ~Our Radiologist Oncologist Is Moving Away~Really Sad~Whaaa!

Believe51 · 12-31-2008, 09:07 AM

I know there are so many other things that can make a person sad through a cancer journey that may seem worse than this. We got the news last night and believed me I just cried.

This intelligent doctor has been through this journey right along with us. She was the one whom performed the WBR & Pelvis radiation. She has been on the team of six who consult for Ed, especially with the Gamma Knife procedures. She has been in a sense, our savior.

We are lucky enough to have her map him out for the ever-so-delicate back radiation. Now I know that we have other doctors that work there but I am lost without a primary RadPerson. We are fortunate enough to have 'chosen' all of our healthcare thus far. I feel lost and empty without her sharing our recovery to NED.

Part of me was relieved that it was not the GammaMan! Whew. There was another gentleman who showed up before our appointment with our leaving doctor. I did not know what to make of him, he seemed to question our entire journey. Maybe he was learning about us, maybe he was a doubting Thomas. One question that made me wonder was "How many facilities do you utilize?" The answer was 3 and I let him know that we are lucky enough to be able to hand pick who we wanted on our journey. I cannot say I do not want him to be our doctor, I am saying that I did not get good vibes from him, I felt uneasy and turned off for a few reasons. I am unsure if I even want him on the consult team. I am saying this with truth and not looking for perfection, just a decent doctor.

So, here we are, a little lost but blessed to have her help before she leaves us for bigger and better endeavors. Right now we do not know who will be our next Radiologist Oncologist so it is more research and appointments before we need them. I am going to think positive and say it is not pressing since after this set of rads we will be on chemo again and will not need radiation for a long time.

So as sad as we are this too shall pass. Shock factor is over and time to move on. Here we go again. Uggh. Thanks for listening to me ramble, seems like that is all I can do about it now!>>Believe51

12-31-2008, 09:07 AM	#1
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	~Our Radiologist Oncologist Is Moving Away~Really Sad~Whaaa! I know there are so many other things that can make a person sad through a cancer journey that may seem worse than this. We got the news last night and believed me I just cried. This intelligent doctor has been through this journey right along with us. She was the one whom performed the WBR & Pelvis radiation. She has been on the team of six who consult for Ed, especially with the Gamma Knife procedures. She has been in a sense, our savior. We are lucky enough to have her map him out for the ever-so-delicate back radiation. Now I know that we have other doctors that work there but I am lost without a primary RadPerson. We are fortunate enough to have 'chosen' all of our healthcare thus far. I feel lost and empty without her sharing our recovery to NED. Part of me was relieved that it was not the GammaMan! Whew. There was another gentleman who showed up before our appointment with our leaving doctor. I did not know what to make of him, he seemed to question our entire journey. Maybe he was learning about us, maybe he was a doubting Thomas. One question that made me wonder was "How many facilities do you utilize?" The answer was 3 and I let him know that we are lucky enough to be able to hand pick who we wanted on our journey. I cannot say I do not want him to be our doctor, I am saying that I did not get good vibes from him, I felt uneasy and turned off for a few reasons. I am unsure if I even want him on the consult team. I am saying this with truth and not looking for perfection, just a decent doctor. So, here we are, a little lost but blessed to have her help before she leaves us for bigger and better endeavors. Right now we do not know who will be our next Radiologist Oncologist so it is more research and appointments before we need them. I am going to think positive and say it is not pressing since after this set of rads we will be on chemo again and will not need radiation for a long time. So as sad as we are this too shall pass. Shock factor is over and time to move on. Here we go again. Uggh. Thanks for listening to me ramble, seems like that is all I can do about it now!>>Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!