Hi Val - How long have you been on?
I have been on Herceptin since 2004, in March it will be 5 years for me. Side effects? Stiff joints, runny nose, nothing major. My cardiologist says as long as I exercise every day my heart should be fine and so far he is right. I am still NED so I don't have a visible tumor to test to see if Her2 reactivity has changed. How about you?
Love Kim from CT
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2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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