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Old 12-22-2008, 02:20 PM   #1
Sheila
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Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
Any Suggestions? This is getting Old!

Just hoping someone out there can give me some suggestions or hope...I am sick and tired of being sick and tired. Today completes my 4th round of Antibiotics, 5th bottle of cough medicine with codiene. I have been sick since the day after Thanksgiving, I missed going to San Antonio as I was diagnosed with viral pneumonia the day before. Almost 1 month later, i am no better, have been to the emergency room for more bloodwork, blood cultures, and xrays, missed my last chemo and will be unable to get the one tomorrow (no Taxol, just Herceptin) as i am still so sick. I have lost 10# (I needed that) and have no appetite. Today I felt like the movie Rudolph when i called my children and parents and "cancelled" Christmas (Dinner) which was to be at my house. I havcen't been out of the house except for Dr's visits for a month ( so that tells you how much Christmas shopping I've done!). The other good side (besides losing weight, is that my blood pressure has gotten so low, I have been able to go off the Avastin induced high Blood Pressure Meds! )

I am really getting down about this, tired of coughing, tired of fatigue....just wondering when it will end...I was so upset about missing San Antonio, but now Christmas....ughhhhhhhhhhh....and not to mention missing my chemo for over a month.... I need to recover and soon! This is getting the best of me.
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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