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Lori R · 12-20-2008, 11:25 AM

Snuffi,

First of all I love your choice of log'in. I give my daughter "snuffis" all the time. Code for lots of love and hugs. I always thought this was some weird thing that we made up.

Now..the port. I am sorry that your mom had a difficult time. I get the impression that the newer ports are less problematic. I have had mine since my initial surgery and have been pleased.

I find that it is just one less thing to think about when going in for treatment. I just get "hooked up..." and I am ready to roll. So, just one more vote for getting the port.

But...you will find on this web site, we all understand that everyone is different. What works for one might not work for another. The port certainly is a reminder that all is not "perfect", to some that constant reminder would be bothersome.

I don't think there is a "wrong" answer on this one.

Best of luck...Lori

12-20-2008, 11:25 AM	#7
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Snuffi, First of all I love your choice of log'in. I give my daughter "snuffis" all the time. Code for lots of love and hugs. I always thought this was some weird thing that we made up. Now..the port. I am sorry that your mom had a difficult time. I get the impression that the newer ports are less problematic. I have had mine since my initial surgery and have been pleased. I find that it is just one less thing to think about when going in for treatment. I just get "hooked up..." and I am ready to roll. So, just one more vote for getting the port. But...you will find on this web site, we all understand that everyone is different. What works for one might not work for another. The port certainly is a reminder that all is not "perfect", to some that constant reminder would be bothersome. I don't think there is a "wrong" answer on this one. Best of luck...Lori __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)