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Old 12-10-2008, 10:54 AM   #17
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Talking Joy

Wanted to write to let you know that I am thinking of you as you proceed forward. I like hearing the word 'stable' in your journey since this will help to get you where you need to finally be. It does get tiring trying new drugs, failing, trying something else, etc. One does wonder if they will ever get there, but many do, Joy.

There is a wonderful team resposible for getting you there, you also have such a terrific caregiver team. Your life is full of love and laughter with times of feeling down, which is normal. It is alright to get down but as mentioned before, you cannot get stuck there. You are pure and true to yourself and your life has had many changes recently and through time. I admire your spunk, your drive and your thirst to trudge through. One day, one step, one breath at a time. Put your mind there and one foot in front of the other, keep plugging and never lose hope.

I could not respond to your first post 'My 'Lil Latte Pardner' since I have been a bit stuck myself and do not like to reply to detailed posts when I feel like that. Thankfully it does not last too long. I needed to tell you that I love you each and every day and not a latte goes by without first toasting a prayer or well-wishing to my Joy! If I had the power I would take away that sadness for a moment so you could clearly see that fortitude you endure and what hope we all have for you.

As for your love, Luca, I think the love this man has for you will let him see beyond the bald head. Whenever I look at a hairless head I look deep into their soul, I see a fight and I say a prayer. I see courage and faith, I see a long journey, I wish for a happy ending. I feel Luca will see the same. Although this is a concern for you I am hoping those feelings will lighten up for you a bit.

Keep us posted when you find out more details about your regime. You are so good providing those details that help us to know the true 'Joy' in all of our lives. Lots of love, Sweetness, I'll have a latte in a little while on you. Keep fighting the good fight that you are. I will see you in NED My Love!!>>Here is a huge cyber-hug....Aaahhh. Did not mean to squeeze that hard, I just love you so much!!>>Believe51

PS: As Julie mentioned, are you willing to do the Cyberknife?? Spheres?? From who I have known doing the sphere adventure, their response were fabulous.
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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