HER2 Support Group Forums - View Single Post - It is not normally like me......BUT......

Joan M · 12-03-2008, 07:35 PM

Mary Jo,

If it would make you feel better you should arrange for a brain MRI.

In my own case, I didn't have one until the bc spread to my lung last year. As you know, the first MRI was okay, but the second one this September showed a met in my left frontal lobe.

The brain surgeon said she heard I found my own brain met (pretty funny!). That is, I didn't have any symptoms because the met was first discovered on the MRI.

I've also been feeling down lately, and I think it's like a post-traumatic stress. I had to move so quickly to have the brain surgery that I really didn't get much time to think about it. It's like I just jumped into action to get done what I needed to do.

Your headaches are probably from sinus problems. My brother whose prone to that has been having a lot of bad headaches lately, and even his radar went up because of my brain met. He'd also been flying a lot lately and that added to it. He's been taking some nasal stuff and said he's feeling better.

It's really normal to have ups and downs. Cancer is a challenge.

Joan

12-03-2008, 07:35 PM	#32
Joan M Senior Member Join Date: Oct 2007 Posts: 1,851	Mary Jo, If it would make you feel better you should arrange for a brain MRI. In my own case, I didn't have one until the bc spread to my lung last year. As you know, the first MRI was okay, but the second one this September showed a met in my left frontal lobe. The brain surgeon said she heard I found my own brain met (pretty funny!). That is, I didn't have any symptoms because the met was first discovered on the MRI. I've also been feeling down lately, and I think it's like a post-traumatic stress. I had to move so quickly to have the brain surgery that I really didn't get much time to think about it. It's like I just jumped into action to get done what I needed to do. Your headaches are probably from sinus problems. My brother whose prone to that has been having a lot of bad headaches lately, and even his radar went up because of my brain met. He'd also been flying a lot lately and that added to it. He's been taking some nasal stuff and said he's feeling better. It's really normal to have ups and downs. Cancer is a challenge. Joan __________________ Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!