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Old 12-03-2008, 02:36 PM   #15
caya
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Join Date: Jan 2007
Location: Thornhill, Ontario Canada
Posts: 2,320
I am also triple positive, started Herceptin in June 2007 (after completing 3 x FEC, then 3 X Taxotere), started Tamoxifen in July 2007. I am still taking Tamoxifen, my onc. and one second opinion onc. have both advised me to stay on Tamox. for at least a couple of years as I already have osteopania, and Tamox. is good for the bones, AIs supposedly are not.
My onc. and I have discussed this matter of Tamox. vs. AIs, taking my ovaries out - he just does not recommend it for now, probably because many of the studies are not definitive as pointed out here.
I am investigating doing Zometa infusions, I have an appointment with a rheumatologist and will discuss all this with her as well. My onc. thinks it could be a good thing for me.
Yes, what is a triple+ girl to do? (and I am highly ER+/PR+).

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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