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Brenda, I did ask my onc at my last appt. if she was concerned at all about the slight increase in my TM'ers now that I have this extreme scapula pain? She blew them off letting me know that tumor markers aren't reliable & if I had something going on they would of been much higher then 26. (You just proved with your own case that's not always true.)
I tried to get my onc on the phone this last Friday but she is out till Monday. So I called my pulmonary doc and made an appt with him. I will see him Tues. morning & I'm hoping he will order the CT scan. I'm still going to use Chrisy's idea too...I like it. Until I find out what's going on I am going to be a mess.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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