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Old 11-11-2008, 04:37 PM   #40
Kathy S in Tokyo
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Join Date: Mar 2007
Location: From Syracuse, NY but living in Tokyo, Japan for 26yrs
Posts: 132
StephN, the cellwork indicated ER and PR positive but none of the hormonal treatments did a thing. I avoided soy while trying Tamoxifen by skipping that part of the meal. I worried about the soy issue as I've spoken with doctors here who feel that soy is great and others who warn against it.

Now I'm in my moderation stage (although I've never been in much of an overconsumption stage). I don't use highly processed foods where the soy could be hidden or somehow enhanced or concentrated but I do enjoy a little tofu, miso, gooey fermented soy beans and, when in season, fresh boiled green soy beans(edamame). I feel a little better about these as they are closer to the original plant.

I know my soy intake is probably not nearly as much as the average here. A friend who is allergic to soy beans here seems to be okay with the fermented soy products. I probably have "something soy" about 3 or 4 times a week, and only a few bites as a instead of 3 or 4 times a day. I only use about a tablespoon of miso in 2 quarts of water for miso soup as I use kombu (kelp?) and dried bonito or teeny tiny dried sardines for a soup stock. My kids are fine with this but I think my husband longs for a little more miso oomph in his soup (which he can easily add to his own bowl of soup.)
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Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started
Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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