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11-06-2008, 07:06 PM

I was diagnosed in Aug. 2007 Invasive Ductal Carcinoma, Poorly Differenated, HER2 Positive, Node Positive. Had 4 rounds TAC, weekly Herceptin. Bilaterial Mastetomy, Dec. 2007. Surgeon found residual minute foci in breast tissue, Lymph nodes showed no evidence of malignancy. Jan. 2007 Started Taxol, Radiation, continued weekly herception. Onc. said I needed to take herceptin until Jan. 2008. Had side effects from herceptin late in the summer, Started feeling so tired couldn't take care of my self, Lower back pain, chest pain. (Mugga scans OK) Then my face started to break out. Onc said I had herceptin over load. Need to take a break. Break lasted 6 to 7 weeks. Started back on herceptin, Made it for 7 weeks, side effects returning. Onc said Herceptin is so TOXIC, and asked me if I knew that in Great Britian Herceptin only helped 2 out of 100 women. He ordered PET scan, will see him tomorrow. My friend who was with me last week asked him if there was something else I could take, He just shook his head and said no. I'm pretty sure he will take me off herceptin. Anyone got any advice? Not really sure what to do. Been on this site for a while now, and I know there are many of you taking other things.

11-06-2008, 07:06 PM	#1
cullenhill@earthlink.net Guest Posts: n/a	Herciptin Overload? I was diagnosed in Aug. 2007 Invasive Ductal Carcinoma, Poorly Differenated, HER2 Positive, Node Positive. Had 4 rounds TAC, weekly Herceptin. Bilaterial Mastetomy, Dec. 2007. Surgeon found residual minute foci in breast tissue, Lymph nodes showed no evidence of malignancy. Jan. 2007 Started Taxol, Radiation, continued weekly herception. Onc. said I needed to take herceptin until Jan. 2008. Had side effects from herceptin late in the summer, Started feeling so tired couldn't take care of my self, Lower back pain, chest pain. (Mugga scans OK) Then my face started to break out. Onc said I had herceptin over load. Need to take a break. Break lasted 6 to 7 weeks. Started back on herceptin, Made it for 7 weeks, side effects returning. Onc said Herceptin is so TOXIC, and asked me if I knew that in Great Britian Herceptin only helped 2 out of 100 women. He ordered PET scan, will see him tomorrow. My friend who was with me last week asked him if there was something else I could take, He just shook his head and said no. I'm pretty sure he will take me off herceptin. Anyone got any advice? Not really sure what to do. Been on this site for a while now, and I know there are many of you taking other things.