Thank you very much for the excellent info and links. I'd completely forgotten about RFA! It's going on the top of my list. A triple negative friend has had success with cisplatin and gemzar, neither of which I've had so far so I'm still thinking I can buy more time with a little kickbutt here.
I won't be in Syracuse for more than a few days, if I make there at all, and my Japanese National Health won't cover anything worthwhile. Tykerb is available in trials here, but not for caucasians apparently and my onco. can't prescribe it. To bad they don't have LEAP http://www.lapatinib-eap.com/en/summary/index.html open in Japan.
Time to get a little beauty rest.
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Kathy S in Tokyo (44)
11/2004 partial masectomy (clear margins) - ER/PR++ HER+++
12/2004 Tamoxifen
11/2005 Clavicle & neck lymph nodes mets
30 Days rads, 7 months CEF-T Chemo
6/2006 mid chemo lung mets oral toremifene
10/2006 changed hospitals
12/2006 Tamoxifen and monthly Zoladex
2/2007 Dramatic growth of mets! Stopped Tamoxifen and Zoladex
3/2007 Began weekly Herceptin
6/2007 Added weekly Taxol to regime
4/2008 More lung mets - stopped Taxol
5/2008 Xeloda - 3 weeks on 1 week off
8/2008 Got a port!
9/2008 Stopped Xeloda, started weekly Navelbine
12/2008 Tumor progression, stopped Navelbine
1/2009 Taxotere begins again, once in every three weekly Herceptin IVs
3/2009 Added Zometa pelvic bone met, lung tumors progressing, stopped Taxotere/Herceptin
4/10/2009 Whoa seizure! 6cm&3cm brain mets. craniotomy and gamma knife surgery 5/15/2009 Started Adria/Cyto stopped 9/15 due to progession. Brain mets back 10/28 surgery more gamma soon
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