HER2 Support Group Forums - View Single Post

StillHere · 10-20-2008, 07:11 PM

Juanita, you are the first person I have come across that has the jerky leg syndrome thingy. I can take a lot of Benadryl during the day, but cannot take after supper. If I do, I can't keep my legs still enough to sleep. Sometimes I forget to check cold medicines to see if they include bendaryl or generic form. If I take them just before bed I am up for hours tossing and turning. I know when I worked in CICU, there were some people who got very restless from Valium. I figure this is somewhat the same for me. Most people get drowsy/sleepy from Benadryl. I am tired, but very restless. Just nice to know there is someone else out there with the same symptoms. Peace Karen

10-20-2008, 07:11 PM	#31
StillHere Senior Member Join Date: Mar 2007 Location: Greendale, WI just outside Milwaukee Posts: 211	Juanita, you are the first person I have come across that has the jerky leg syndrome thingy. I can take a lot of Benadryl during the day, but cannot take after supper. If I do, I can't keep my legs still enough to sleep. Sometimes I forget to check cold medicines to see if they include bendaryl or generic form. If I take them just before bed I am up for hours tossing and turning. I know when I worked in CICU, there were some people who got very restless from Valium. I figure this is somewhat the same for me. Most people get drowsy/sleepy from Benadryl. I am tired, but very restless. Just nice to know there is someone else out there with the same symptoms. Peace Karen __________________ 04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst 04/05 E & P + HER2+++ 05/05 Mediport 05/05 Cytoxan & Adriamycin every 3wk x4 08/05 Taxol every 2wk x 4, Herceptin every wk x1yr 10/05 Bilat Mast - my Choice 10/05 3/19 lymph nodes Pos, Stage IIIa 11/05 Rad x 37 Rx, R Brst & Axcilla 02/06 Herceptin stopped (L vent HF 40) 03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects 05/06 Started Tamoxafin 06/06 Bilat Free Flap Reconstruction 12/06 Cardiomyopathy reversed-HF normal 01/07 Bilat Saline Implants 07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07 07/07 PET Scan NED, but inflamation at prev surg site. 09/07 Started Femara 10/07 CA 27-29 down to 39 06/08 CA 27-29 down to 32 09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.