HER2 Support Group Forums - View Single Post - Any Stage IV deciding to go off Herceptin?

mamacze · 10-10-2008, 06:22 PM

Rcj11 - I am heartsick that your wife recurred so quickly after going off; and you are right to advise caution. Thank you so much for weighing in. What is her CTC test result? Would you advise CTC screening, now after what you have experienced?
Marily and Andi, you are both so inspirational. Thank you for sharing your stories. marily, I wonder if Dr. Slamon has criteria for how long we need to be NED on Herceptin before he recommends we go off - do you know?
Thank you all again for your kind comments.
Love Kim from CT

ps Becky - a big hug back at you...I miss your company - and if i could just clone your fine thinking mind...!! i hear from Vicki occasionally as well; she is good at staying in touch!

10-10-2008, 06:22 PM	#27
mamacze Senior Member Join Date: Sep 2005 Location: Madison, Connecticut Posts: 638	Rcj11 - I am heartsick that your wife recurred so quickly after going off; and you are right to advise caution. Thank you so much for weighing in. What is her CTC test result? Would you advise CTC screening, now after what you have experienced? Marily and Andi, you are both so inspirational. Thank you for sharing your stories. marily, I wonder if Dr. Slamon has criteria for how long we need to be NED on Herceptin before he recommends we go off - do you know? Thank you all again for your kind comments. Love Kim from CT ps Becky - a big hug back at you...I miss your company - and if i could just clone your fine thinking mind...!! i hear from Vicki occasionally as well; she is good at staying in touch! Last edited by mamacze; 10-10-2008 at 06:25 PM.. Reason: need a PS !