HER2 Support Group Forums - View Single Post - Any Stage IV deciding to go off Herceptin?

Sherryg683 · 10-06-2008, 03:20 PM

I have been on Herceptin ever since my diagnosis almost 3 years ago. I guess I will be on it forever. My Oncologist has mentioned that it's not proven that it's beneficial this far out but seeing the women on this board that are stage IV and still NED, it seemed like they were all on Herceptin indefinately, so mines fine with doing it, if I am. I hope to one day be 10 years out and consider getting off it, right now I'm just not there yet..sherryg683

10-06-2008, 03:20 PM	#13
Sherryg683 Senior Member Join Date: Feb 2006 Posts: 1,014	I have been on Herceptin ever since my diagnosis almost 3 years ago. I guess I will be on it forever. My Oncologist has mentioned that it's not proven that it's beneficial this far out but seeing the women on this board that are stage IV and still NED, it seemed like they were all on Herceptin indefinately, so mines fine with doing it, if I am. I hope to one day be 10 years out and consider getting off it, right now I'm just not there yet..sherryg683 __________________ Sherry Diagnosed: December , 2005 at age 44 13+ positive lymph nodes Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006 4 months Taxotere, Xeloda, Hercepin NED since April 2006!! 36 Rads to follow with weekly Herceptin indefinately 8 years NED now Scans every year Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!