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Thank you all for your encouraging messages.
Sheila I love your quote indeed we are all fighting some kind of battle..
Micheleu no I was not given a number just +++. I am curious as to why you think that high number is better as I do not really think that I agree with your analysis of why I am still NED, but who knows.. I noted that you went to seattle for vaccination, good stuff.
I love this board and the couragous ladies on here (actually the only site I log in), you americans rocks! I love the way no one accept to give up the fight, take action (with food advice ect..) Stage 4 NED in the UK is virtually unknown..
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35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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