Thread: Annual DEXA
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Old 09-26-2008, 04:40 PM   #22
Gerri
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Join Date: Oct 2006
Location: Southern California
Posts: 900
Chelee,

Yes, my knee has been a problem off and on through the last several years. However, it was a lot more painful after my Zometa infusion. I had the bright idea that I was going to start walking at work during lunch the Wednesday after my infusion, even though my knee was hurting quite a bit. I limped around the inside of my building for about 20 minutes and then stopped. After that my knee just kept getting worse and worse, by Sunday night it had swollen so much that I could not walk. Monday my husband took me to the orthopedic surgeon and I had my knee drained and got a cortisone shot. It felt much better the next day and continued improving.

I just got home from the rheumatologist - very interesting appointment. I was really happy to hear that I don't have Rheumatoid Arthritis or Gout - Lupus was already ruled out before this. I do have osteoarthritis in the joints of my fingers but it is not severe. He ran several blood tests at my first appointment and had the results. He said my SED RATE was high - 46 (normal range is 0 - 20) and he also checked my CRP which was also high - 8.11 (normal 0 - 5). These tests both indicate inflamation in my system which could be caused by many things. Since RA and Gout were ruled out, he thinks Zometa may have caused me to have 'Psuedo Gout', possibly an increase in inflamation due to the drug, but he said it should decrease over time - until I get Zometa again. The really interesting thing he said (without me asking) was that I should continue to get Zometa because it has been shown to prevent bone mets and see if I get the same side effects, if so we can deal with them. He said it was definitely worth it to continue.

He also checked my Vit D levels. NO ONE has checked these before and found that I am on the very low side of normal - 41.4 (normal 40 - 100) even though I take almost 3,000 units per day. He told me to increase by 1,000 units and he will check the levels again when I see him in February, after my next Zometa. This guy was great!

Chelee, this should give you the push you need to insist on getting Zometa. Go to the doctor most likely to give in, hopefully insurance won't be a problem. I am so lucky to have a PPO - never have to get a referal, or authorization for treatment.

I hope this info helps you decide what to do. You obviously need to act now so your bones don't get any weaker. Don't wait to get the blessings of your doctors, insist on it and you will feel so much better!

Take care,
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Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
- Robert Brault

Last edited by Gerri; 09-26-2008 at 08:20 PM.. Reason: reworded
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