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I am in a weird kind of limbo as far as the disability goes. I had medical problems prior to this. I was looking into the state's high risk pool insurance when I was diagnosed and was able to get Medicaid through the CDC Breast and Cervical cancer screening program. I am looking into disability, but in part because my diagnosis was botched and we have no idea what stage I was, and my oncologist keeps telling me that I am fine in spite of ongoing problems with my right arm I am not sure where I stand. I also keep getting conflicting information from Social Security. I am not able to do the faux finshes that I was doing because of the mastectomy and the port so my business went down the drain. I have started taking some art classes at the University but now I am having to miss so much because of doctors appointments. If I had a job they would fire me. I really don't know what I am going to do because this program only will go two years. I am looking into my options and I guess I am going to get an attorney about the disability. But even then it could be years before they get this sorted out.
Leslie
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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