HER2 Support Group Forums - View Single Post - So frustrated-in tears

fauxgypsy · 09-24-2008, 08:56 AM

I thought that I was going to see a dermatologist until this morning but it turns out that the dermatologist that they called will not take Medicaid. So they just scheduled an appointment with a general surgeon to biosy the rash. I am worried about the biopsy because it is on the mastectomy arm to begin with and when I ask them about this everyone of them tells me to ask someone else. Since I have so few visits I feel like it would make better sense to see a dermatologist in case they are wrong about it being a viral infection. If it is not a viral infection there is really no point in seeing the infectious disease person again. It just seemed like a really round about way of doing things. I saw the infectious disease person a couple of weeks ago and he did no tests, just prescribed medicine that is not solving the problem. With Medicaid you only get 5 prescriptions a month and only two of those can be name brand. So this month I could only get part of my prescriptions filled. I cannot afford for them to just throw medicine at this until it goes away. Besides the fact that I am the queen of side effects so it could just get worse.
Leslie

09-24-2008, 08:56 AM	#6
fauxgypsy Senior Member Join Date: Apr 2007 Location: Mississippi Posts: 600	I thought that I was going to see a dermatologist until this morning but it turns out that the dermatologist that they called will not take Medicaid. So they just scheduled an appointment with a general surgeon to biosy the rash. I am worried about the biopsy because it is on the mastectomy arm to begin with and when I ask them about this everyone of them tells me to ask someone else. Since I have so few visits I feel like it would make better sense to see a dermatologist in case they are wrong about it being a viral infection. If it is not a viral infection there is really no point in seeing the infectious disease person again. It just seemed like a really round about way of doing things. I saw the infectious disease person a couple of weeks ago and he did no tests, just prescribed medicine that is not solving the problem. With Medicaid you only get 5 prescriptions a month and only two of those can be name brand. So this month I could only get part of my prescriptions filled. I cannot afford for them to just throw medicine at this until it goes away. Besides the fact that I am the queen of side effects so it could just get worse. Leslie __________________ In the world of destiny, there are no statistics. Jan. 26- mammogram and ultrasound- suspicious lump Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes ER+/PR+, her2 +++, nuclear grade 3 of 3 February 20-PET scan showed something on liver. No biopsy. March- Started carboplatin, herceptin, taxol on a four week cycle May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy June 21- new onc, very concerned that there had been no biopsy, June 18th-CAT scan, bone scan-negative August 7th - Brain MRI-negative August 9th- mastectomy, all pathology negative January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07 July 2008-Finished Herceptin!