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I don't post often. You are not repeating yourself. I was able to get Tykerb, Xeloda and Herceptin approved by my insurance company off label. I was on Herceptin after diagnosis, taken off when my brain mets were discovered. Then went to Tykerb/Xeloda. When small progression in my bones (which had been clear for 1 1/2 years), was noted in a PET scan in June, I added Herceptin back into my treatment. My brain has not shown any progression since I started on Tykerb - I also had WBR at brain mets diagnosis. I needed to switch oncologists to find one that would approve this combination. I will know more if this Herceptin is doing the trick for my bones in December when I have a repeat PET/CT and another brain MRI.
Warmly,
Laura
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