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Believe51 · 09-17-2008, 11:15 AM

Always have time for sending positive vibes your way My Sweet. Ed's WBR went rather well. Side effects were minimal and if able, he would do it again. Please do not fret about him and others that have had WBR and mets returned. They found 10 NEW mets in places that were NOT the original spots. Ed had one year without anything generating in the brain! Ew, that sounded rude!

Gamma knife went well too. His complaints were that the IV hurt more than the halo. He also had more than his fair share of Morphine (ha,ha...laughing now). His head healed nicely. No headaches, no bruising, no confusion. Decadron is tough but again, it is the best thing to take for the swelling. He did not get the sleep he needed because one of the mets was in the 'sleep center'. Even the met on the brain stem was creatively treated. It was an all day event for him AND then some because he had to keep getting up since his bone mets (spine) were killing him. He did stay overnight but I know others who went shopping that day.

I am sure you will get better responses from our 'Brain Specialists' here. They will rescue you, as they have rescued us!

I wish I could hug you right now but I can only embrace you in heart. Although I will be cruising the Carribbean, prayers will still come. I will send all my love, prayers and positive enery to those I love here. I was told by a friend NOT to think about cancer while I am on vacation. How can I not?? Cancer is our life and my friends all need prayers and good healing vibes.

I am so sorry that you are facing this. Yes Lovey, it is very scary. One thing I can say is that his cancer appears to be ONLY in the brain, not within the body (others too). I did not know this could happen. He is a great responder to radiation. We do not have the results yet so I cannot share.

Until we talk again, listen for your ears to ring, it will be those prayers and vibes. A loving, positive, healing hug for you. Remember, you have a wealth of knowledge and support here. You also have different angles to attack this from. I know you can do this.

Believe51

09-17-2008, 11:15 AM	#4
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Done Always have time for sending positive vibes your way My Sweet. Ed's WBR went rather well. Side effects were minimal and if able, he would do it again. Please do not fret about him and others that have had WBR and mets returned. They found 10 NEW mets in places that were NOT the original spots. Ed had one year without anything generating in the brain! Ew, that sounded rude! Gamma knife went well too. His complaints were that the IV hurt more than the halo. He also had more than his fair share of Morphine (ha,ha...laughing now). His head healed nicely. No headaches, no bruising, no confusion. Decadron is tough but again, it is the best thing to take for the swelling. He did not get the sleep he needed because one of the mets was in the 'sleep center'. Even the met on the brain stem was creatively treated. It was an all day event for him AND then some because he had to keep getting up since his bone mets (spine) were killing him. He did stay overnight but I know others who went shopping that day. I am sure you will get better responses from our 'Brain Specialists' here. They will rescue you, as they have rescued us! I wish I could hug you right now but I can only embrace you in heart. Although I will be cruising the Carribbean, prayers will still come. I will send all my love, prayers and positive enery to those I love here. I was told by a friend NOT to think about cancer while I am on vacation. How can I not?? Cancer is our life and my friends all need prayers and good healing vibes. I am so sorry that you are facing this. Yes Lovey, it is very scary. One thing I can say is that his cancer appears to be ONLY in the brain, not within the body (others too). I did not know this could happen. He is a great responder to radiation. We do not have the results yet so I cannot share. Until we talk again, listen for your ears to ring, it will be those prayers and vibes. A loving, positive, healing hug for you. Remember, you have a wealth of knowledge and support here. You also have different angles to attack this from. I know you can do this. Believe51 __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!