Thread: Bummed
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Old 09-17-2008, 10:51 AM   #2
pattyz
Senior Member
 
Join Date: Mar 2006
Posts: 306
re: bummed

Barb?,

Is there the possibility for you to have Temodar approved for use?

I have been on Xeloda/Temodar for slightly over 3 yrs now. I have had all kinds of response, from near 50% shrinkage TWICE, in just four months tx., to stable, no new mets (ever) and a few progressions size wise when we down sized my dose/schedule.

I am once again at 'no change' after this last dose/schedule upgrade re: last MRi.

This is 'now'. After having five seperate focalized rad sessions to treat 16 other brain mets successfully. Three were of headframe type SRS. Two sessions of CyberKnife/no headframe SRS. Those were over the course of about 18 mos.

Also: for the life of me I can't put my hands on the info, but:

Many trials using a lowered dose of Temodar in conjunction with various rad tx's..... most have to do with primary brain cancer. But, there are also various ca brain mets being trialed, too. These have all had positive results overall.

Just another idea, maybe, for you....

Really hoping for the best outcome no matter how you proceed,

warm hugs if you'll have them,
pattyz
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