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Michele, I did pretty much the same thing Sassy did. I was DX 12-05...I was googling everything I could find on her2/neu which lead me to this board. (Thank goodness!) My doom & gloom onc which was so young left me feeling hopeless even if that was not his intent.
When I ran across this board I will never forget when I found your post and then one from Audrey. I finally had some real hope! It sticks in my brain like it was yesterday. I remember telling my husband & Mother about Audrey's & your posts. When 1st dx one can never have enough hope and you gave me that. So thank you.
Now let me just say BIG CONGRATULATIONS on your 5th year cancerversary! Talk about a major milestone. Your such an inspriation, and here's to you & NED living happily ever after.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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