HER2 Support Group Forums - View Single Post - ~Mighty Oak's Gamma Knife~September 10, 2008~

Believe51 · 09-09-2008, 12:27 PM

Wanted to say that this almost did not happen for us due to coverage stop on August 31! I had to make about 30 phone calls to find someone that could break the rules and treat him as a person.....not a $5,130 flex co-pay, not a number, not a cancer patient.....for 60 seconds please look at him like a person! Uggh! I let them know that after the gamma knife we WOULD have coverage and the most we would owe is $3,000 (-Fridays Zometa/Faslodex)

We did it. From the grace of God someone broke the rules and appproved this procedure. They took a chance and I shall make good on this.

Do not fret our friends, we are fine. We are not scared as one may think, I even though I would be more nervous. We need this and cannot wait to have it done.

I asked if I could take pictures since this may be the only time I see him in a "HALO"..LOL. Kidding, he IS my Angel!!

So as Jackie Gleason would say.....

....And Awaaaay Weee Go!!
Love to all>>Believe51 & The Mighty Oak

09-09-2008, 12:27 PM	#21
Believe51 Senior Member Join Date: Jun 2007 Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE Posts: 2,999	Before we go........ Wanted to say that this almost did not happen for us due to coverage stop on August 31! I had to make about 30 phone calls to find someone that could break the rules and treat him as a person.....not a $5,130 flex co-pay, not a number, not a cancer patient.....for 60 seconds please look at him like a person! Uggh! I let them know that after the gamma knife we WOULD have coverage and the most we would owe is $3,000 (-Fridays Zometa/Faslodex) We did it. From the grace of God someone broke the rules and appproved this procedure. They took a chance and I shall make good on this. Do not fret our friends, we are fine. We are not scared as one may think, I even though I would be more nervous. We need this and cannot wait to have it done. I asked if I could take pictures since this may be the only time I see him in a "HALO"..LOL. Kidding, he IS my Angel!! So as Jackie Gleason would say..... ....And Awaaaay Weee Go!! Love to all>>Believe51 & The Mighty Oak __________________ 9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI 6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression 10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement, NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5 12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!