Not something that I would have done differently, but a tip on a resource for the newly diagnosed:
After I had completed most of my treatment, I got a letter from my insurance company (Aetna) saying that there was a nurse case manager available to me that I could use for help with specialists, referrals, second opinions, etc. Great timing, but it may have been a new service they instituted. A friend of mine who was dx in 2002 was given a case manager early on by her insurer, and she said it was a tremendous help to her, having someone to assist with organizing a lot of things and keeping everything on track.
So, my suggestion is, check with your insurance company after you are dx, to see if a nurse case manager is available to you to assist with all the other appointments, etc., you will need down the road for your treatments.
Hopeful
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