Anyone not taking the AI's
Anyone out there ER/PR positive and not taking an AI to block the estrogen? I have taken all four at one time or another and have such debilitaing side effects. Now I am not on anything and feel so unprotected. My onc wanted me to give the aromasin another try which I tried for 3 weeks. I had such pain and cramping in my feet and hands and was retaining alot of fluid in my legs, feet and hands my pc put me on lasix and celebrex for the pain. Got so bad I could not work, so I have stopped it. I feel like such a failure at taking these meds, but they make me feel so bad. Worse than the chemo. Just wondering how others fair with these drugs.
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Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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