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Lori R · 08-22-2008, 02:31 PM

I asked my Dr. about the test and was told that it was not a "standard". I assumed that the test must be extremely costly and possibly not reliable.

Based upon this thread I am going to demand that we run the test. It appears my assumption was incorrect on both fronts; cost and reliability.

I do receive scans on a 3 to 6 month basis so I am confident that I am being monitored appropriately. I just feel that I am missing out on another tool that could help us tell what this mysterious monster is up to.

08-22-2008, 02:31 PM	#5
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	I asked my Dr. about the test and was told that it was not a "standard". I assumed that the test must be extremely costly and possibly not reliable. Based upon this thread I am going to demand that we run the test. It appears my assumption was incorrect on both fronts; cost and reliability. I do receive scans on a 3 to 6 month basis so I am confident that I am being monitored appropriately. I just feel that I am missing out on another tool that could help us tell what this mysterious monster is up to. __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)