Hey Debbie in North Carolina, I am Anita in South Carolina!!
I have been experiencing the same symptoms, my mouth feels cotton-y all the time, my tongue tingles and my lips just flat out drive me crazy. I have gone to two different dentist and an oral surgeon, none of which even tried to figure out what was going on. I have asked my Onc for an MRI for this and other issues, but she refuses to order one for me, so I am glad to hear you did get an MRI.
One of the dentist suggested sucking on a piece of sugar free hard candy all the time. That did not help me, so I tried Altoids and would keep 5 - 6 in my mouth all the time. That was a temporary fix.
I finally found a good neurologist and go see him the beginning of next month. I will let you know what he finds out. Let me know if the vitamin D works for you.
Sorry I can't be more help, but I am still searching for a relief for this.
__________________
Anita
er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
|