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Lori R · 08-12-2008, 06:54 AM

Again, based upon the consistently good advice of my sisters on this site, I recently started to back track with Drs. to obtain copies of all notes and scans.

I began with my radiologist and was VERY surprised at the level of detail that were in his notes. I actually found it reassuring that I had a Dr. who took notes on everything from my diagnosis to my religious beliefs.

I also feel more in "control", knowing that I will have everything neatly compiled in case I need them in the future. I owe a huge debt of thanks to a sister that wrote in and said it was a nightmare gathering information to support a disability lawsuit.

08-12-2008, 06:54 AM	#19
Lori R Senior Member Join Date: Jan 2008 Location: Evergreen, Colorado Posts: 454	Again, based upon the consistently good advice of my sisters on this site, I recently started to back track with Drs. to obtain copies of all notes and scans. I began with my radiologist and was VERY surprised at the level of detail that were in his notes. I actually found it reassuring that I had a Dr. who took notes on everything from my diagnosis to my religious beliefs. I also feel more in "control", knowing that I will have everything neatly compiled in case I need them in the future. I owe a huge debt of thanks to a sister that wrote in and said it was a nightmare gathering information to support a disability lawsuit. __________________ 2007 Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008 Feb-Complete 6 cycles- T&H- NED March - Continue - Herceptin Only April - Rads for 6 weeks 2009 Continue Herceptin - Continue NED April - Recurrance- 3 cm. Liver Met May - Cryosurgery June - November - Abraxane + Herceptin Aug - PET/CT - CTC = 0 Back to NED 2010 January - Continue NED July - Recurrance - 3 cm Liver Met CTC=1 August - Cryosurgery #2 August - November Navelbine November - Back to NED - End Navelbine 2011 Feb - Recur - 4 cm Liver Met - Same Left Lobe March Surgery it is -Couldn't get a clean margin July - Confirmed continued liver involvement August - Begin Herceptin + Tykerb October - Mixed results from H+T Add Abraxane + H + T - Nov - April 2012 January PET Scan - It's working!! April - Back to NED July - Recurrance August - Begin TDM-1 Trial (Taxol + TDM-1)