Thread: Follow-ups?
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Old 07-21-2008, 07:40 PM   #8
Becky
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Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
I am almost 4 yrs out and in September it will be my last every 4 months onc visit and I will graduate to every 6 months (which he plans to do for several yrs before I graduate to once a yr). I still see my rads onc every 6 months since I had lumpectomy (on both sides, the left being a very small low grade dcis with NO rads - which everyone on this board knows this makes me more of a wreck than the Her2+ invasive cancer side). I also see my surgeon once a yr and the gyne once a year. Plus my yearly physical with my primary care physician.

When I see my onc, he runs the estradiol level, liver enzymes and blood panel plus the CA 27/29. He also does a breast exam (which all the above docs also do - my primary care also runs my CA 27/29 and the other blood work as well as cholestrol (HDL, LDL, triglycerides).

I don't do other scans. Did a brain MRI as a baseline as well as CT of the abdomen, pelvis and chest and a bone scan. Did these one year out because like many women on the board, I had alot of rib pain at that time and wanted to rule out possible bone or liver mets.

Until I got my ovaries removed, both the onc and gyne ran the CA125 (ovarian cancer marker) as well.

In early Sept, I will be at 4 yrs and feel very comfortable with myself. I feel I am also very attuned to my body and feel well. I do and believe in monthly self breast exams. I have had some false lumps (a cyst on the left and glandular tissue from surgery on the right) but I found my lump myself and I believe it saved me as it could always have been bigger than it was.

I get a mammo once a year now as most surgeons make you get it twice a year until you've passed year 3. I plan to start getting an MRI or a dilon (BSGI - breast specific gamma imaging) at the 6 month and a mammo the second 6 months. Just had clean digital on July 7 so after the new year I will plan my new test.

Peace,
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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