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Excellent intelligence, Jean. I do not have mets but it makes sense for me to get a baseline now that I am finished with chemo and herceptin. It seems like this would be a logical way to show progression before other technologies pick up on something and diesease load increases. I would love any further info on the test (cost, etc) as I am determined to have this done.
Thank you so much for clarifying what the test was for and giving us the inside scoop. I am considering a vaccine trial for non-mets people. I think this would help me evaluate if the vaccine is working (assuming I don't get a placebo!).
Best,
Janelle
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Janelle
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
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