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Sheila · 06-13-2008, 03:31 AM

Bo
I met your Mom 5 years ago when I happened upon this board...we were "node sisters"...both swapping stories of what treatments we were on for the suprclavicular nodes, which truly are the most stubborn. I went through a few rough spots with my little grandaughter who was very ill and your Mom was so caring and comforting...I could feel the love and compassion...even the hugs half way across the country. She taught me to always be positive, and live and cherish each day....she was a role model to all whose path she crossed on this board, and I am forever grateful to have been blessed in knowing her and getting knowledge and advice from her. We have truly lost a valuable member, but her merits and memories will live in my heart forever.
Sending much love to you, your sister and your Dad. Thank you for sharing your Mom, she was such a true inspiration to others.

06-13-2008, 03:31 AM	#3
Sheila Senior Member Join Date: Aug 2003 Location: Morris, IL Posts: 3,507	Bo I met your Mom 5 years ago when I happened upon this board...we were "node sisters"...both swapping stories of what treatments we were on for the suprclavicular nodes, which truly are the most stubborn. I went through a few rough spots with my little grandaughter who was very ill and your Mom was so caring and comforting...I could feel the love and compassion...even the hugs half way across the country. She taught me to always be positive, and live and cherish each day....she was a role model to all whose path she crossed on this board, and I am forever grateful to have been blessed in knowing her and getting knowledge and advice from her. We have truly lost a valuable member, but her merits and memories will live in my heart forever. Sending much love to you, your sister and your Dad. Thank you for sharing your Mom, she was such a true inspiration to others. __________________ "Be kinder than necessary, for everyone you meet is fighting some kind of battle." Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin Last edited by Sheila; 06-13-2008 at 06:28 AM..