Thread: MS questions
View Single Post
Old 06-12-2008, 06:51 PM   #4
Joan M
Senior Member
 
Joan M's Avatar
 
Join Date: Oct 2007
Posts: 1,851
Bill,

My sister had MS for 34 years, having developed it at age 17. At that time there were no MRIs and she was given a spinal tap after developing the classic symptom of a drop foot. She "recovered," married and had two boys. Today she would have been a grandmother.

About seven years ago I had symptoms of feeling off balance. Perhaps it was hormonal because I had just had a full hysterectomy, but the doctor ordered a brain MRI just to be sure. If your friend's sister has MS it would probably show up in the scan. Although there's a small chance that MS would be missed on the scan, since your friend's sister has symptoms of the kind you describe, that would mean there would be a lesion big enough to be seen.

I hope she'll be okay. Perhaps she has a pinched nerve in the back or particularly in the neck which can cause those kinds of symptoms.

Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
Joan M is offline   Reply With Quote