HER2 Support Group Forums - View Single Post - Stage IIIB ER/PR(-) ...what are you guys doing post-treatment?

lkc Gumby · 04-30-2008, 05:12 PM

Hi Val,

Interesting that you are still on Herceptin, too. I have neverchanged my Herceptin regimen ( still every 3 weeks ) since Oct 05 I don't have mets, but my onc down here seems to think since I responded so well I should stay on it. Not sure when He'll D/C me.
It's my comfort blanket I guess. The insurances don't balk, they go by the dr rec.
anyway,
I get Zometa every 6 mos as well prophylactively for my bones.and take 2000mgs calcium W/ Vit D I get TM every 6 mos, and PETs annually.
I am on a low fat, no sugar diet, and basically follow the " Breast Cancer diet" I am slim and high energy , so I just eat alot of the " good " foods.
Oh yeah , since I am er/pre neg I swear by Flaxseed, too.
I looked into the new vaccine trial and am waiitng to hear what the enrollment criteria will be. I suspect it will also be for low expressors of HER amplification. ( It will be on your FISH report )
Anyhow, hope that helps!

04-30-2008, 05:12 PM	#11
lkc Gumby Senior Member Join Date: Feb 2006 Posts: 437	Hi Val, Interesting that you are still on Herceptin, too. I have neverchanged my Herceptin regimen ( still every 3 weeks ) since Oct 05 I don't have mets, but my onc down here seems to think since I responded so well I should stay on it. Not sure when He'll D/C me. It's my comfort blanket I guess. The insurances don't balk, they go by the dr rec. anyway, I get Zometa every 6 mos as well prophylactively for my bones.and take 2000mgs calcium W/ Vit D I get TM every 6 mos, and PETs annually. I am on a low fat, no sugar diet, and basically follow the " Breast Cancer diet" I am slim and high energy , so I just eat alot of the " good " foods. Oh yeah , since I am er/pre neg I swear by Flaxseed, too. I looked into the new vaccine trial and am waiitng to hear what the enrollment criteria will be. I suspect it will also be for low expressors of HER amplification. ( It will be on your FISH report ) Anyhow, hope that helps! __________________ Linda Dxed Stage IIIC May 05, 12 pos nodes er/pr -neg,Her -pos LVI Right partial mast & partial axillary dissection-June14,2005 Right modified mast-no clear margins- June 30, 2005 DD AC x4 Taxotere X4 with Herceptin Rads x 35( 5 fields ) Left prophylactive mast( atypia & hyperplasia found ), put on Tamoxifen x 1 yr; D/ced due to endometrial thickening bilateral recon (saline implants)May 06 Nipple recon July 06 metformin 2010 removal of implants due to severe encapsulation, insertion of gummies 2013 Reclast Q yr NED!!!